Registered UK charity no. 1174106

Campaign: Bikes for Papworth

The Royal Papworth Hospital is moving to a new location and has a Cystic Fibrosis ward dedicated to patients suffering with Cystic Fibrosis. Patients are often hospitalised for a number of weeks or longer, stuck in their room 24 hours a day due to risks of cross infection between patients.

Excercise is so important for patients with Cystic Fibrosis because it can help clear mucus from the lungs as well as improve physical strength and overall health.

During a hospital stay, exercise can further improve the results of treatment by providing another way of clearing mucus from the lungs and help to manage the mental health of patients who may have been stuck in bed for days on end.

The Royal Papworth Hospital needs 24 bikes in order to allow each of the patients who stay on the ward to have a bike in their room, providing patients the ability to exercise as often as they are able to. At the moment, patients are only able to do this if there happens to be one available to move into the room.

There is not the money available via the NHS to fund these bikes; we believe ALL patients on the ward should be able to keep moving, keep fit and keep well. We want to provide ALL 24 bikes to the ward but this comes at a large cost.

We need £10,200 to fund all 24 bikes – check out our campaign page here; if you can spare even £5, that could help us reach the total we need.

Life is for living

Donation to the Muscular Dystrophy Support Centre

We are delighted to have been able to donate a therapeutic ultrasound machine for the Muscular Dystrophy Support Centre physiotherapy satellite clinics in the Midlands.

Utilising ultrasound waves through muscle, nerve and connective tissue, ultrasound treatment helps to reduce pain, muscle spasm and joint contracture.

The therapy helps patients to remain fit and healthy for as long as possible and prevent their loss of independence.

Early intervention slows muscle loss, reduces pain, keeps people in work and participating in community life, and keeps people out of hospital.

Thank you for helping us continue to make these donations.
#lifeisforliving

Donation to the Norfolk Hospice

We are delighted to share news of a recent donation we have made to The Norfolk Hospice.
The Sara Stedy equipment helps patients to move from a sitting position to a standing position and vice versa, safely and in a dignified way. Where the patients have some strength in their legs, this method of moving is better than a hoist because it is more dignified and encourages the patient to use their muscles a little.
Nurses at the hospice have reported that it is really smooth to use and much easier than the traditional hoist type equipment.

Recent Donations

Acorns Children’s Hospice

We are so pleased to have been able to make a donation to Acorns Children’s Hospice in Birmingham.

The bath cradle is designed and used to enable easy access for children and young people to the hydrotherapy pool via the ramp enabling patients to benefit from the water, increasing general well-being and providing opportunities for exercise and relaxation.

Children and families using the hydrotherapy facilities at Acorns Hospice enjoy an engaging, inclusive experience with both physical and emotional benefits.

Children with limited movement or speech often find the warm water and environment very soothing; pain is reduced and tight muscles relax – entering the pool would be a challenge in itself without the use of the bath cradle.

It is also used to shower clients who are able to sit, but need some support and provides safe, comfortable bathing for those with degenerative or severe physical conditions such as Multiple Sclerosis, Cerebral Palsy, Motor Neurone Disease, and many other groups with severe disabilities, unpredictable movements and rapidly deteriorating body conditions.

St Gemma’s Hospice

We have donated 4 Calendar Clocks to St Gemma’s Hospice in Leeds which are designed for use in a dementia care environment.

The clock is easy to locate as the background colour stands out in a communal area. Often Calendar clocks are hard to read and have confusing layouts – these are neat and uncomplicated.

St Gemma’s Hospice now have two clocks situated on each shared bay and the clear design of the time and the day has proved to be reassuring and re-orientating for those who are poorly and confused, especially due to spending long periods of time in bed.

 

Let’s Party 2

We had a fantastic night celebrating with wonderful people. Thank you so much to all of our incredibly generous guests. All the money raised will go to specialist medical care providers including hospices associated with Cancer, Cystic Fibrosis and life limiting conditions in memory of our wonderful Simon Cooper.

A huge THANK YOU to our business sponsors: Table Dressers, Fastsigns Enfield, Posh Pics Photo Booth, Ice Cream Dreams, Truly Lush and Brooks Macdonald for helping to make Let’s Party 2 extra special.

     

Jo Collins and Friends For Simon – Event at Chickenshed Theatre

It was a fabulous night at Chickenshed and we were honoured to have held the second event in memory of Simon which raised over £2000 to be split between Chickenshed and the Simon Cooper Foundation. Thank you to all who supported this event. 

Donation to the North London Hospice

The Simon Cooper Foundation are thrilled to have been able to donate a specialist pressure-relieving mattress to the North London Hospice costing £2,450.

Why?

People who are unable to move around tend to put pressure on the same areas of the body for a long time which can lead to pressure damage – incredibly painful sores and ulcers. This can be serious and lead to severe complications such as infection or blood poisoning.

Specialist pressure-relieving mattresses use air pumps to continually inflate and deflate sections and keep the skin moving which reduces the risk of pressure sores. This can make a huge difference to the quality of experience of every patient who lies on them.

Ladies Afternoon Tea with Clairvoyant

We had a great time at the Ladies Clairvoyant and afternoon tea event organised by friend of the Simon Cooper Foundation, Melissa. Thank you to all of the guests for helping to raise £872 for the Simon Cooper Foundation. This will go towards more specialist medical equipment to support patients suffering from Cancer, Cystic Fibrosis and life limiting conditions. We are so grateful and hope to welcome you back to our next event.

We were proud to deliver another 2 nebulisers to be given to Cystic Fibrosis patients at Great Ormond Street Hospital and Children’s Charity

These machines are not available to patients on the NHS and as they deliver medication to the lungs quickly, the e-flow nebuliser allows more time to be spent living and a little less time on treatments.

Donation to Great Ormond Street Hospital

3 of our trustees delivered 2 nebulisers to be given to Cystic Fibrosis patients at Great Ormond Street Hospital today.

CF affects many internal organs, but in particular the lungs and digestive system by clogging them with thick, sticky mucus.

The eFlow rapid nebuliser system is an innovative device for the treatment of respiratory diseases. Medications can be transported deep into the lungs quickly and efficiently saving patients time – 50% quicker than other nebulisers.

Through our fundraising this year, we intend to deliver many more.

                           

Projects for 2018

We are thrilled to announce, as well as supporting Great Ormond Street Hospital, we are also working with North London Hospice and Royal Papworth Hospital. We plan to assist with specialist projects throughout 2018 in order to support the well-being of patients living with Cancer, Cystic Fibrosis and life limiting conditions.

The Simon Cooper Foundation is thrilled to announce one of its proposed projects for 2018. We will be providing funds for specialist medical equipment for Cystic Fibrosis patients at Great Ormond Street Hospital.

More details & projects to be announced in the very near future.

                           

We were honoured to have been chosen by the Enfield Town Christmas Parade of Lights as one of the supported charities.
Two of our trustees were presented with a cheque for £800.
Thank you so much to the generous Enfield community. We are so grateful.

The launch night took place on 7th October 2017 and it was a memorable event. Sadly the evening was cut short due to vandals setting off the fire alarm. We believe CCTV images have been captured of the individuals involved and are being passed to the police.

Committee members who worked so hard to organise the launch event.

Thank you to all of the generous supporters for joining us.

The trustees and committee would like to thank guests for their patience and understanding. We are thrilled to have raised in excess of £6000 and look forward to continuing our fundraising efforts for medical care providers including hospitals and hospices as well as research centres associated with Cystic Fibrosis and Cancer.